On Living with Chronic Issues During a Pandemic

Posted on Dec 2, 2020 at 4:54 PM in Blogging, Diabetes, Lincoln Nebraska, Stories & Reflections

I don’t have a political dog in the fight right now. The election from November sapped me of any energy I have left for such nonsense. I care but I just don’t care as intensely as I did prior to Biden unseating Trump as the leader of our nation.

I say that I don’t have a dog in the fight because the fight is ongoing in my city and try as I might to understand the perspective of the “other” side, I cannot. 

Daily, I put my head down and do a whole lot of garbage that a whole lot of people don’t have to do. I normally do not complain about it and I also don’t give much thought to the fact that I’m kind of a weirdo in all I have to do to keep my body working smoothly.

So forgive me for a moment while I complain loudly.

Today I’m just all out of grace for those with normal, functioning bodies. (Don’t worry, the grace will come back after I rid myself of the venom.) At the start of Covid I figured that everyone had someone in their lives to be careful about and for… Your grandma is elderly so you’re careful for her. Your aunt had breast cancer last year so you’re careful for her. Your brother has type 2 diabetes so you’re careful for him. Your child has asthma so you’re careful for him.

And then I, gratefully by the way, lived through months of this swirly, confusing, unknown time of Covid-19 sweeping the entire globe and I began to notice that—wait a sec—not everyone is being careful. I have tried to understand the reasons why, but I have yet to really figure it out. Am I asking for a statewide mask mandate? Nope. I think it would be smart, but then again, no dog, remember? Do I think we should lockdown everything and ignore the pain of small businesses? Nope. Absolutely not. Maybe shutting down is the right way to go, but as for me, I’m doing everything in my power to support local business owners. We tip well. We thank them. We patronize their businesses, masked and distanced, happily giving our money to places that might be struggling. We share their names broadly on social media.

No, what I’m annoyed with is how very easy it is for the physically blessed among us to say, “just stay home if you’re not healthy.” I’m over it. 

Just. over. it.

I’m beyond exhausted dealing with the body the good Lord has given me—which functions and dysfunctions in a variety of ways—and then I have this? My neighbors and friends saying that they are fine and they will continue to enjoy their liberties, thankyouverymuch? It’s a giant “screw you” from those who are already doing well and can’t be bothered with the hurting, tired, weak, chronically beleaguered among them.

The truth is that the healthy and young among us can get sick and it’s no thang. Odds are in their favor. Despite the growing death count of Americans, I still gather this feeling of “it hasn’t affected me, so I don’t give a damn.” 

I’m over it. 

What is your life if you really don’t care about others? What are you living for? If your personal liberty is the most important thing in your life I believe you need to take stock of your blessings. If you feel like your thoughts are the wisest and your family is the best, if you can still run and play and all your organs are functioning perfectly, if you have no reason to fear Covid-19, then bully for you.

Your grandma might feel differently about things.

Your neighbor might feel differently about things.

I feel differently about this thing.

I have stupid type 1 diabetes and stupid rheumatoid arthritis and a ridiculously extroverted personality and a little bit of a fighting spirit and a lot of seasonal affective disorder and while I am mentally ready to get past this pandemic already, I have to pay attention.

I cannot hang out with you.

I will not eat in a restaurant.

I will not go to church where people are singing—even masked.

I did not see loved ones for Thanksgiving and will miss them on my birthday.

So whatever you think about politics and viruses and conspiracy theories and small businesses, know that people like me are listening to everything you say and we are tired. 

Have an opinion, sure. But also have some compassion.


Edited on 12/7 to add that while I am still worshipping with the saints in my basement each week, singing mightily from home, I am grateful that others can gather together. This is what I feel I need to do to stay healthy. I have no desire to make decisions for everyone else! I want restaurants to thrive. I want people to worship. I want life to go on as best as it possibly can and I recognize that each family has to make their own calls. Besides masking and distancing to keep others healthy, I think there’s a lot of gray room for decision-making. Again, I’m not in a position to decide what’s best for everyone. I’m happily not in charge of such things.

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